231107 - UK

The food quantity is raised to 38ml. She dropped in her oxygen level twice today. Tomorrow we want to check their record to see if she is dropping more these days then some days before. We feel that she is. Sometimes you just feel that without it being the fact.
The strange thing is that they did an eye test on her again today. They told us that they couldn’t do it properly yesterday. What now? That was not what they told us yesterday. We were then told that she did well on the eye test and today they came and did a new one because they were not sure on the result yesterday because Mary Ann can kept her eyes closed (I guess the clever girl knew that was coming her way – eye tests are awful). Nevertheless today the staff told us the test from today was fine. How can we trust that when they didn’t tell us the truth yesterday? I defiantly want to ask them not to keep anything from us again.
Today have been so filled with all my hopes for Mary Ann. I hope everything will come easy to her but not too easy. I would also like her to know that life is a struggle sometimes. I gather that she already knows that since she already had to fight for life – literally. I’m also filled with all my longings for her to come home, open her eyes more, walk, talk, and so on. I look mostly forward to discover her personality and see which eye colour and hair colour she will get. To understand that she’s really mine! I have tried to look at other babies the last days. I feel she look like any other baby. That’s a good thing compared to before, but still I would like to be able to see a difference from other babies now.

ABC Baby Poem
A is for angel, sent from above,
B is for baby, smothered with love,
C is for cute as cute can be
D is for diapers and changing them for me
E is for everything baby and more
F is for father walking the floor
G is for glad you are finally here
H is for hiccups that are funny and dear
I is for icky sticky messing
J is for Jesus and His blessing
K is for kisses and kindness and keep
L is for Love, so wide and deep
M is for Mommy and her loving arms
N is for Never coming to harm
O is for oat cereal and later Cheerios
P is for precious little fingers and toes
Q is for quiet, baby is sleeping
R is for relatives, always come peeping
S is for sleep, but not for your folks
T is for tub and all those long soaks
U is for unconditional as in love from your parents
V is for very active as you will soon merit
W is for wakeful, watchful and wise
X is for the Xtra special light you brought to our eyes
Y is for you - who is as bright as the sun
Z is for zest of living that you gave us, little one.