121207 - UK

I have never been so angry at hospital staff before as today! I came back to Mary Ann’s room after being in my own with her for several hours to change her. And right there on the changing pillow was a list over all the children at the whole ward and their diagnoses! The note was divided in different fields with name, social security number, their special needs and then – my diagnose!
That gave me a number of objections. What is going on with that note? Why is that note lying there? Where has the discretion gone to? It’s already a railway station in here! That is totally unprofessional! It’s is unacceptable! Please show some courtesy! All the above objections and even some where given to the poor nurse.
A totally other thing is, I do not understand why it is important for all the staff members to know Mary Ann’s mum has rheumatism. It has absolutely nothing to do with Mary Ann’s care, wellbeing or health! I can think of a number of other things they should concentrate on instead. After my five minutes of anger I let it pass for Mary Ann’s sake. I have to loosen up and keep thinking they do take good care of our precious. But the first thing I would like to do after we get her home is to talk with them about different issues. I know that their professional skills are great. I appreciate that and we defiantly need that since we don’t have any skills in that direction. But their ethics are doubtful.

I know that the parents beside Mary Ann is not open about the diagnose they had recently revolving their baby. A lot of people might know or have guessed that I have rheumatism. People can also just ask and I will tell them without a doubt. But the thing is, it should be my decision on behalf of my self as on my child.
The parents just mentioned happened to be someone I know through work. I would not be happy if they read that I have rheumatism or anything else private then I don’t know them any better. I also find is odd that all staff members on the whole ward knows my diagnose as well as a lot of other private things when I don’t even know their name.